How has learning about the history of research ethics impacted your view of biomedical research?
Studying the history of research ethics has influenced my perspective on biomedical research by emphasizing the importance of respecting patients’ rights and ensuring their safety during research studies. It has also highlighted the need to carefully assess and evaluate the evidence from research studies to prevent harm and unethical treatment. This is crucial because unreliable or invalid findings could lead to poor outcomes for the group or population being studied.
In looking at the studies you reviewed for your PICOT question, do you feel that today’s researchers adequately protect the rights of human subjects? If not, what additional measures do you recommend?
I believe that most researchers today prioritize protecting the rights of human subjects. However, in the realm of big data research, there is a risk of lower moral standards or principles, with some researchers prioritizing their own goals over supporting positive changes in healthcare for patients. Biomedical research is increasingly leveraging the opportunities presented by big data. This type of research relies on large-scale databases, multiple data sources, advanced storage capacity, and novel computational tools, enabling high-velocity data analytics (Ferretti et al., 2020). Given the current technologies, analytic methods, and regulations, Institutional Review Boards IRBs cannot rely solely on their traditional review frameworks (Ferretti et al., 2020). To tackle this issue, I propose that the oversight of big data research be taken up by the U.S. Department of Health and Human Services. This would help in identifying and preventing any potential harm or unethical practices that could impact participants.
Ferretti, A., Ienca, M., Hurst, S., & Vayena, E. (2020). Big data, biomedical research, and ethics review: new challenges for IRBs. Ethics & human research, 42(5), 17-28.
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